Help others by sharing your experience
- Researchers are exploring if a new technology called a cardiac digital twin can improve health outcomes for people with different heart conditions.
- A cardiac digital twin is a computer model that replicates how your heart looks and works, helping test treatments safely and predict potential problems.
- Join this workshop if you’ve had a diagnosis of pulmonary arterial hypertension or dilated or hypertrophic cardiomyopathy, or if you advocate for people with these conditions.
What will happen in the workshop?
The workshop will include creative activities to explore different experiences. We’ll listen to people living with these heart conditions and talk with researchers developing the new technology.
What we learn from this taster session will help us plan a series of creative workshops in Spring 2026. Through this new programme, we aim to use creativity to raise awareness of the technology and how it could support people in the future.
If you enjoy any kind of creativity – writing, making, drawing or simply using your imagination and having ideas, we’d love to hear from you.
You don’t need previous experience of research or any particular creative methods to get involved.
How you could benefit from joining in:
meet other people affected by pulmonary arterial hypertension and cardiomyopathy and learn from their experiences,
meet researchers working on cardiac digital twin technology right now, to learn more about their research and how it could impact future healthcare.
learn, create, explore in a relaxed and friendly creative online group,
receive £50 via BACS as a thank you for taking part in this 2h online workshop.
How do I get involved?
To get involved, you must have been diagnosed with pulmonary arterial hypertension, or dilated or hypertrophic cardiomyopathy. You can also take part if you advocate for people affected by these conditions.
We have two opportunities for you to experience our creative workshop and get involved in shaping our 2026 programme.
Choose one of the following dates:
Wednesday 19th November 2025, 6-8pm
Tuesday 20th January 2026, 1-3pm
Indicate your preferred session by using this online form. Places will be given on a first-come, first-served basis. If you’d like support completing this form, please contact Emily.howlett@mft.nhs.uk
We’re committed to ensuring that people from a wide range of social and ethnic backgrounds and with different experiences have a say in research. We aim to make our opportunities as inclusive and accessible as possible. If there is anything that we can do to enable you to take part, please let us know.