Help others by sharing your experience
- Researchers are exploring if a new technology called a cardiac digital twin can improve health outcomes for people with different heart conditions.
- A cardiac digital twin is a computer model that replicates how your heart looks and works, helping test treatments safely and predict potential problems.
- Join these workshops if you’ve had a diagnosis of pulmonary arterial hypertension or dilated or hypertrophic cardiomyopathy, or if you advocate for people with these conditions.
What will happen in the workshops?
The workshops will include creative activities to explore different experiences. We’ll listen to people living with these heart conditions and talk with researchers developing the new technology.
We’ll also use creative activities to explore ideas, questions, hopes and concerns about cardiac digital twins technology. Some of the creative methods that we might use include:
Storytelling
Creative writing and poetry
Games and play
Drawing, making and craft
If you enjoy any kind of creativity such as writing, making, drawing or simply using your imagination and having ideas, we’d love to hear from you.
You don’t need previous experience of research or any particular creative methods to get involved.
How you could benefit from joining in:
meet other people affected by pulmonary arterial hypertension and cardiomyopathy and learn from their experiences,
meet researchers working on cardiac digital twin technology right now, to learn more about their research and how it could impact future healthcare.
learn, create and explore in a relaxed and friendly creative online group.
receive £450 (via BACS) at the end of the programme as a thank you for taking part in the full workshop programme.
How do I get involved?
These online workshops will take place between April and October 2026.
There will be two groups running at different times – Group 1 will have sessions in the evening (6-8:30pm) and Group 2 will have sessions in the afternoon (1:30-4pm).
In total, there will be six 2.5 hour workshops (approximately one per month). You need to be available for all sessions in either group.
To take part, you must:
Have been diagnosed with pulmonary arterial hypertension, or dilated or hypertrophic cardiomyopathy or advocate for people affected by these conditions.
Be available for all sessions in Group 1 or Group 2, see the details below.
Check that you are available for all of the workshops in Group 1 or Group 2.
Complete this online form by 20th March. We will notify you about whether you have a place on the workshop programme by 3rd April. If you’d like support completing this form, please contact Emily.howlett@mft.nhs.uk
We’re committed to ensuring that people from a wide range of social and ethnic backgrounds and with different experiences have a say in research. We aim to make our opportunities as inclusive and accessible as possible. If there is anything that we can do to enable you to take part, please let us know.
GROUP ONE
Workshops are on Tuesday evenings, 6pm-8:30pm on the following dates:
21st April
12th May
9th June
7th July
15th September
6th October
GROUP TWO
Workshops are on Tuesday afternoons, 1:30pm-4pm on the following dates:
28th April
19th May
16th June
14th July
22nd September
13th October