Online meeting for young people to give their views about new research into rare and childhood cancers

Have a say in future research about new cancer treatments for rare and childhood cancers

What’s involved?

We are looking for teenagers and young adults aged between 13-23 who have experienced cancer, to join an online discussion (2 hours).

The aim of the discussion is to make sure that researchers who are designing a new clinical trial, take into account the views of young people who have experienced cancer.

By sharing your opinions, you can make a real difference to how research is done.

You can take part in the group if you still have cancer or if you have experienced it in the past.

You don’t need to have any previous experience of health research, just to be happy to share your views in a group discussion. The meeting will be relaxed and informal.

There will be about 6-8 young people, a member of the Vocal team and 2 researchers from The Christie and Cancer Research UK.

We will tell you about the new research study that is being planned and ask your opinions about it, so we can make sure that it is relevant for young people.

The discussion is confidential, the names of people who take part will not be shared outside the group. The session will be recorded to make sure we don’t miss anything in the discussion.

Information and quotes from the discussion will be used to help shape the research study. No names or identifiable information from participants will be included.

If you are under 16 years of age, we will need your parent or guardian’s agreement for you to take part.

More details:

The discussion will be on Zoom so you will need to

• Be happy to participate using Zoom on a computer

• Agree for the session to be recorded

• Agree to maintain confidentiality

The session will take place at the end March/beginning of April at a time and date that suits everyone attending. We will ask you about your availability when you get in touch.

Everyone who takes part in the online discussion will be paid £50. In order for the payment to be processed you will need to provide your bank details. Payments can take several weeks to be processed.

We are committed to making our opportunities as inclusive and accessible as possible. We want to support you to be involved so if there is anything that we can do to help you to take part please get in touch with Kat using the email below.

To take part:

Contact Katharine.cresswell@mft.nhs.uk, ideally by 15th March 2021